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Jaxon's Journey Bulletin No. 16

Hi All,  

 

On the 15th of October we took part in the Nike Marathon. This is always a special day for us, seeing you all get behind Jaxon is always very special.  

This year Jaxon raised funds to go towards Epilepsy Action Australia, something very close to our hearts. As the leading and oldest provider of epilepsy services nationwide, they focus on improving self-management skills, increasing wider public understanding of this devastating condition, and are at the forefront of partnering and funding research into interventions and treatments.Thank you to those who donated.






Jaxon celebrated his 6th Birthday on 29th October. This was celebrated with close family at his favourite place, the Diamond Valley Miniature Trains.

Jaxon has a big year ahead of him, he will start Prep at a specialist school in 2024.

We are excited for him and of course very nervous. We know this will be so good for his development and we are excited to see him enjoy this next chapter.

 

Jaxon proudly graduated from Kinder, we cannot thank all educators at Genius Childcare enough for nurturing our boy and making his time at Kinder so enjoyable and most importantly inclusive.







Jaxon was admitted to hospital for an MRI of the brain. In true Jaxon style he handled this procedure so well, he is so brave.

Unfortunately, we have not received any updates regarding treatment moving forward.

 

The neurology team are going to take Jaxon’s scans to a conference with a board of specialists. They will all view Jaxon’s case and discuss what the next step might be.

 

This may be a new trial of medication or surgical intervention.

 

We hope every day that something will help relieve the seizures that spark every two minutes during sleep. Our main goal is to improve Jaxon’s quality of life. Sadly, we see him suffer daily from exhaustion and frustration.

He amazes us that he is still able to laugh every single day and he has taught us to enjoy the little moments in life.




Wishing everyone a very Merry Christmas and a safe New Year.

Thank you for all your ongoing support and love for our boy.

 

Enjoy the Christmas break and we will see you all in 2024!



 




Update from Terry Walsh (Foss)

 

JAXONS JOURNEY FUNDRAISER POTENTIAL EVENTS FOR 2024

Jaxon’s Journey fundraising events in the new year-

Sunset Series held at the Botanical Gardens with runs and walks to be held in March 2024

Car Rally possibility for February/March 2024

Trivia Night with prizes, memorabilia, and auction items.

Memorabilia Raffle like the successful raffle that was held at APM GROUP Bolton Clarke Aged Care Project.

 

MELBOURNE CUP SWEEPS HELD IN NOVEMBER 2023

Jaxon’s Journey fundraiser on APM GROUP Projects for the Melbourne Cup sweeps raised just over $900 for the fund. Congratulations to all the winners and thanks for all who participated in the event.

 

DISABILITY TRUST FUND

Financial Reconciliation report has been finalised.


JAXONS JOURNEY WEBSITE

DONATIONS ARE GOING OK AT THE MOMENT- SLOW AND STEADY CAPTAIN KIRK SAID. PLEASE LET YOUR FRIENDS AND FAMILIES KNOW OF THE WEBSITE MAKE A DONATIONS TO A WORTHWHILE CAUSE.

PURCHASING OF MERCHANDISE IS NOW AVAILABLE THROUGH JAXON’S JOURNEY WEBSITE.

 

 

TRUSTEES MEETING

Trustees meeting held on 26/10/2023 at Kew.

Main issues discussed were future fundraising activities for 2024, Bolton Clarke landscaping and lawnmowing monies has now been reconciled, memorabilia still available and more to come for 2024.

Next meeting due Thursday 15th February 2024

Venue TBC 

Merchandise- To all APM Group people can we make a concerted effort to try and sell all current merchandise available on sites.

 

Vending machines are on all sites. Sales depend on the number of workers at any one time. Once again, another form of fundraising which is creating regular ongoing income for the Trust.

 

CURRENT FUNDRAISING

 

NEW INITIATIVES

“Cashies for Jaxon’s Journey” has started.

Recent Cashies for Jaxon’s Journey

If anyone knows of someone who needs some work done contact MG/Foss.

Looking forward to continue to maintain all our support to both Lauren, Jaxon and Lantern.


 

KEEP UP THE GOOD WORK

IF ANYONE HAS ANY NEW FUNDRAISING IDEAS PLEASE CONTACT 

B, LUC, LANTERN, DELILAH, ECTOMORPH OR FOSS

 

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