Jaxon
McInnes

Hi All, Update on Jaxon. We have contacted Jaxon’s medical team regarding the trial. Unfortunately they have hit some road blocks and have not been able to get the trial approved in the timeframe they advised us. The team will try to get the trial approved at another hospital and be in touch early 2026. Sadly Jaxon’s seizures are still impacting him daily. Almost every night he is having nocturnal seizures, waking tired & working hard to get through each day. He does though,

Hi All, Update on Jaxon. Jaxon is still waiting for the trial medication which should be ready September/October 2025. After lots of...

Hi All,   Jaxon has been doing really well at school, all his teachers say how happy he is and how he always tries his best at...

Hi All, Jaxon started school this year, he attends a specialist school in Seaford. The transition from kinder to school was a little hard...

We are pleased to announce the winners of our raffle for Jaxon. 1st prize – Samsung 75 inch TV, David J 2nd prize - $200 Woolworths...

Hi All, On the 15th of October we took part in the Nike Marathon. This is always a special day for us, seeing you all get behind Jaxon is...

Hi All, Jaxon attended a 3 week intensive therapy at NAPA in June. He worked really hard, we worked on building strength in his ankles...

Hi All, We have a busy few months coming up with Jaxon attending a 3-week intensive therapy program through NAPA. This begins end of May...

Hi All, Welcome to our first bulletin of 2023. I hope everyone had a great Christmas and a Happy New Year. We had an eventful end to 2022...

Hi All, We celebrated Jaxon's 5th Birthday in October. Due to still recovering from hospital and seizures we had a small celebration at...

Hi All, We haven’t had a very good run with Jaxon's seizure control. For the last month Jaxon has sadly been suffering nocturnal...

Tree lopping at MD Mums place today- pine tree now disappeared thanks to Lantern, Mr Sleepy (not this morning) and the Foss at work!...